An Insight Into My Week

Last Friday I had my regular check up appointment with the rheumatologist, the consultant is a nice lady who I've seen for the last few years, her kind & caring manner always puts me at ease. She told me once again that treatment is minimal for those with my conditions & I left feeling downhearted at the thought of living with these issues for the rest of my life as they continue to worsen. I'm not going to lie, when you get told time after time that your problems can't be solved, it makes you feel pretty unhappy. Yet again I had attended an appointment that was of no use to me, which seems to be becoming quite a thing for me these days. The following Wednesday & Thursday I had two more appointments at the cardio clinic. Wednesday's wasn't so bad, they just fitted me up to a monitor to track my heart rate which I could cope with, unfortunately I can't say the same for Thursday's appointment, I had to have a Tilt Table Test which wasn't an experience I'd ever want to repeat. I was strapped to a table & hooked up to a number of machines. The table was then tipped upwards & forwards and I had to stay there for almost an hour whilst Two cardiologists monitored the machines! This was all done in a dark room and  I felt dizzy & sick the whole time! When it was eventually over and I was finally unhooked from everything, they told me to remain seated for a few moments whilst I got myself together and had a drink  but I just wanted to leave as soon as I could. My Mum & sister were waiting for me outside and both said I looked a little out of sorts when I came out but I'm sure they would too if they had been hanging in the air for an hour! Now I've said all that I guess I should explain why I needed these tests in the first place, I don't want to go into too much detail, I'll save that for my next blog because I don't want this one to become too long and boring. But basically, I've got a thing called Marfan Syndrome & because of that loads of different health problems can occur, such as POTS, which is what they are testing me for right now, it's something to do with blood pressure & heart rate. If the results come back as positive, meaning something is wrong, then I'll probably be put on medication for it, which wont bother me as I've been taking medications all my life. My rheumatologist also requested me to have some blood tests to make sure there's nothing contributing to my severe joint pains lately & I'm now waiting for her to write to me with the results.

Well I think that's it for now. I've tried to give a bit of an insight into my week, which has probably made a boring read but if I'm honest, I find it rather therapeutic as I don't discuss this stuff with anyone so blogging gives me a chance to get it all off my chest. For my next blog I'm thinking about talking about marfan syndrome/Hypermobility and how that has affected my life, but that will be a pretty long story so I might have a few weeks of planning to do before I'm ready to publish it.
                                                                        X

Fergie and Holly... X X

My two Budgies Fergie & Holly are going to be the subject of this blog as I thought it would be nice to talk about a happier topic. I'll start by giving you a little information about them. Fergie is my oldest bird, she's 2 & a half years old & I got her from a pet shop at only 2 months of age. With her beautiful sky blue & white colouring, she looks nothing less than perfect. She really is a unique looking bird. Holly is just as adorable with her pretty green & yellow feathers, and her unusual white spots on each cheek. She's only 8 months old & has been with us since she was just 6 weeks! My nephews named Fergie after Alex Ferguson, as we originally thought she was a boy! But now I have to tell people she's called after Fergie from Black Eyed Peas. Haha. Believe it or not, I actually made the same mistake with Holly, I called her Olly because I thought she was a male, until a breeder corrected me. Obviously I then changed her name to Holly. Both birds are clear wing spangles, meaning they have no dark markings. Now I've got that out of the way, I talk about that they are like..

In my opinion, having pet budgies is nothing but a pleasurable experience, especially if you are someone who likes company, because unless its their bedtime, there is never a quiet moment. With their amusing ways & delightful chatter, they brighten up my everyday. their fascinating antics are enough to entertain anyone, Fergie's all time favourite trick is lifting her cage door up with her beak, then letting it drop so it bounces down with an almighty thud! She only does this for attention if no one has been to check on her for a while. She definitely knows what to do to get noticed, she wouldn't let you ignore her even if you wanted to! Lol. Holly hasn't quite mastered the art of such tricks yet but with Fergie as her influence I'm sure it wont be long before she's up to the same things. She's a little quieter than Fergie, she twitters along all day but her tone is much lower, but she is a bit more playful than Fergie, I often walk in to find her hanging upside down from the top of the cage! Haha, Fergie on the other hand, prefers to stand tall & proud on her perch and show off her whistling skills as if she's performing on stage! Where-ever you are in the house, you can always hear her cheerful chirping which I find rather uplifting, but I'm sure you'd find it a tad annoying if you aren't keen on birds.
One of the best things about them is their obedience & willingness to do as they're told, for example, they know that they haven't to start their day until someone has taken their cover off in a morning & put the radio on in their room. If I do this at 8am, they will start chirping, if I don't do it until 11am they wont move or make a single sound! That's what you call well behaved budgies! Another thing I love about them is the bond they share between them, one day never passes by without me catching them rubbing beaks & snuggling. Cuties! I also should mention that Fergie seems to have a super special bond with my Mum, which is strange considering she wasn't as keen on birds as I am lol. Fergie being Fergie, must have picked up on this & decided to set herself the challenge of trying to win my Mum over by making a special effort with her, and would you believe it, it worked!! She now loves Fergie (and Holly) just as much as I do! Good Work Fergie Birdy..!! To finish off this blog I've included a photo of my birds sharing a cuddle, which is just one of the many beautiful photos I have of them. x x


The Critique of my Marfan Physique.

Written in response to the unwelcome yet frequently made remarks on her strikingly slender physique, Lucy’s piece will resonate with many ...