When I first received my Marfan Syndrome diagnosis many years ago, I felt like I had been given a death sentence. No word of a lie, I thought the Doctor was trying to tell me I was about to die. Panic was rising within me and shock waves ran through my body as she said the words Life Threatening Disease . My feelings have changed a bit since then, and I no longer want to punch the Doctor in the face, but at the time that was exactly what I wanted to do, because I was a furiously angry teenager who was literally just getting over spinal surgery and the last thing I wanted to hear was that I had another terrible health problem to contend with. I’d already felt isolated for the last few years due to the health problems I'd endured throughout my childhood, and now here I was again, sitting in front of the Consultant being made to feel even more abnormal as she told me I was the victim of a rare and serious "disease" I vaguely remember storming out of the clinic that day
Tattoos. Piercings. Coloured eyeliner. Keen knitter. Daughter. Sister. Fabulous Auntie. Blogging mostly about life with Marfan syndrome and Chronic illness. Welcome to the Life Of Lu, by Lucy Alexandra Atkinson.