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Showing posts from 2021
I'm just gonna start by being really honest with you all. This year has been rough for me. Really rough. My Marfan related health problems have taken their toll on me and I feel physically exhausted. I feel emotionally exhausted too, but I don't like openly admitting that. I don't know why, I guess it makes me feel ashamed as I sound weak. I don't want sympathy, I just want to express myself. If you've followed me for a while, then you'll know that I already have various medical ailments mostly as a result of Marfan syndrome. I live with chronic pain, PoTs, a complete bowel prolapse, and numerous other problematic issues. I was just about managing to cope with all that but then Marfan syndrome started affecting my gastrointestinal system, and I've lost too much weight. I've been slim for a few years now, but not this slim. I'm just about sitting at 6st at the moment, which is far too thin for my height. I've been referred to the dieteics team and
https://www.marfantrust.org/articles/212-the-critique-of-my-marfan-physique-part-ii?fbclid=IwAR2qXCnUl-VGKiMsF7P2k352fl7__sJYF8VTshADrhZCKxTa2kmEvVXlb-I   Hello everyone, here is part 2 of The Critique of my Marfan Physique. Written by me, published by the Marfan Trust. <3

The Critique of my Marfan Physique.

Written in response to the unwelcome yet frequently made remarks on her strikingly slender physique, Lucy’s piece will resonate with many Marfan folk whose slim stature is also the recipient of such unwarranted attention.   Hey guys, here's a blog written by me, published by Marfan Trust. The Critique of my Marfan Physique.    https://www.marfantrust.org/articles/201-the-critique-of-my-marfan-physique https://www.marfantrust.org/articles/201-the-critique-of-my-marfan-physique