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The Daily Realities..

Over the last few years, I've been very open on Blogger about my life with Marfan syndrome and numerous health conditions, but I haven't been quite as forthcoming with those around me because if I'm to be honest, I struggle to fully express the significant impact that chronic illness/health conditions have on my day to day life. I don't look like someone with chronic illnesses. I don't use a wheelchair, a stick or any disability aids, so I'm afraid of telling some people in case they think I'm over dramatising it. But that is far from the truth. I've lived with chronic pain for a long time now, gradually building up and becoming more widespread over the years. I've learnt to become good at pushing my unpleasant physical sensations aside to get on with my every day life though, so no one would ever guess it. No one would know (unless you are my Mother) that on a typical day I experience several different types of pain and discomfort throughout my body
I'm just gonna start by being really honest with you all. This year has been rough for me. Really rough. My Marfan related health problems have taken their toll on me and I feel physically exhausted. I feel emotionally exhausted too, but I don't like openly admitting that. I don't know why, I guess it makes me feel ashamed as I sound weak. I don't want sympathy, I just want to express myself. If you've followed me for a while, then you'll know that I already have various medical ailments mostly as a result of Marfan syndrome. I live with chronic pain, PoTs, a complete bowel prolapse, and numerous other problematic issues. I was just about managing to cope with all that but then Marfan syndrome started affecting my gastrointestinal system, and I've lost too much weight. I've been slim for a few years now, but not this slim. I'm just about sitting at 6st at the moment, which is far too thin for my height. I've been referred to the dieteics team and

Every Scar Tells a Story

This blog is an unexpected one really as I've never planned on sharing my scar on blogger before, but when I looked back at the full length photograph of my scar that my Mum had taken, I realised what an eye-catching photo it was and thought it would be an interesting topic to discuss. So here I am, showing off my 14 inch spinal scar that I've had since I was 13 years old due to needing a spinal fusion to correct an aggressive double curve. As you can see, I was cut open from my neck to my waist but luckily I was left with a very neat scar. The protruding hardware that you can see poking it's way through my skin is more noticable than the actual scar and that's because the bolts & screws are looser than they should be, but that can't be altered now.  I've never shared my scar publicly before because it's not really seen as a popular thing to do, but I don't care. I'm not a follower and I won't keep it hidden to please others. I will show