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September Update..

Hi everyone, I've not been very good at keeping you all updated this year. I've written the odd blog but nothing regular. I'm so sorry about that. I've tried a few times but there's so much going on with my health that I don't always know where to start. It gets a bit overwhelming trying to type it all up. It must seem like I keep doing a vanishing act but I've actually been waiting for my Gastrointestinal consultant to get back to me before I updated you all. However, I've now been told that there's little chance of that happening any time soon due to massive delays. I recently saw my Dietician & she advised me to contact him regarding my on-going gastrointestinal problems. She would like to know what his plan is before she advises me any further. Unfortunately though, I've been unable to get in touch with him & my GP says this is now the 'new normal' due to astronomical staff shortages & backlogs. So I'm just left in limbo at the moment but I've faced delay after delay over the last 2 years, so I should be used to it now!


My gastrointestinal system isn't getting any better though & I've had to learn to adjust my diet accordingly without any input from the specialist as he still hasn't looked at my test results. The symptoms tend to vary quite a bit though and if I'm having a particularly bad day, then I just try to stick to my nutritional supplements instead of filling myself up with food I can't digest. However, some days are better than others & I'm able to tolerate solid meals, so I've had to learn to make the most of those days. It's no fun, but you get used to it when it becomes your new way of life. I can't say it hasn't been hard, especially since I already have numerous other health issues going on, but if there's one thing I'm good at, it's adapting, as that's what I've had to do all my life with my health conditions.


Unfortunately, my weight hasn't increased much at all since last year. I'm still significantly underweight for my height. Which is really disheartening as I genuinely feel like I try my best. But I guess I need to remember that I can only tolerate as much as my stomach will digest, and if that's not much some days, then that's ok. Although I haven't gained much weight, the nutritional supplements are full of protein and have helped build up my muscles ever so slightly, so I'm going to take that as an improvement compared to last year. I do worry about what will happen in the long run if I can't gain or keep losing weight, but for now I know the nutritional shakes are giving me all the nourishment my body needs, along with the food that I can tolerate, so I try not to overthink it too much. I did gain a few pounds a little while ago, but then I had quite a bad gastric flare up & I lost it again. I'm hoping that once things settle down after my recent flare up, I might start gaining a little again. I guess we'll see. I still have so much more to say and tell you about, but I'll save that for another blog, as it gets a bit frustrating trying to fit everything into one article. But thanks for reading, it's always very much appreciated.


Lu.. x 


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